You are not alone. Nearly one in of babies are born with a congenital heart defect. There are more adults living with CHD than children. Heart murmurs, cyanosis (bluish color to the skin or mucous membranes), clubbing of the finger or toe nails, shortness. Congenital heart disease is survivable, manageable, yet in the routine years between infancy and adulthood, sometimes forgettable. The Adult Congenital Heart Association is a resource, advocate and knowledge base for everyone affected.
William was born with a critical congenital heart defect (critical CHD), during a time when children born with critical CHDs typically died before their first birthday. William survived, and now as an adult living with a critical CHD, he shares how important continued medical care and ongoing research are for others who live with critical CHDs. As medical care and treatment have advanced, people with heart defects are living longer and healthier lives, many into adulthood. This remarkable progress presents new challenges to meet the special needs of this group of people. CDC is working to learn more about people living with heart defects and to identify strategies to improve their health.
The objective of this review was to synthesize the best available qualitative evidence on the everyday life experiences of adults living with an implantable cardioverter defibrillator for cardiovascular disease. Introduction: Cardiovascular disease is a rising concern worldwide. Sep 04, · The total number of young adults living with parents would have been even higher had we included those living with the parents of their spouse or partner. Among to year-olds, %, or , people, did so in July , according to the CPS; this group has remained relatively stable over the past decade.
The patients with congenital defects included in this higher risk group include those with: single ventricles or those palliated with a Fontan circulation. chronic cyanosis (oxygen saturations or cardiomyopathy requiring medication. defects requiring medication. pulmonary hypertension (high blood pressure in the lungs).